INVISIBLE CHRONIC ILLNESS WEEK

Invisible Chronic Illness Week
September 8-14, 2008 in the U.S.

This is my submission for an article to be posted for this week.

This past June our daughter got married. It was a beautiful wedding and of course I cried. Now imagine planning a wedding for 200 guests that is predominantly gluten-free. What's gluten- free you ask?

Three years ago our daughter was diagnosed with an invisible illness called Celiac Disease. One year later another 4 of us were also diagnosed. Today there are 7 of us in our family that have Celiac Disease. This plunged all of us into an unkown world of new foods and diets. We got a crash course in all things gluten-free.

Celiac is an auto-immune illness that prevents the absorption of wheat, rye, barley and sometimes oats. I had no idea that these offending grains could have such an impact and that they were in just about everything!

Imagine having to giving up your favourite bread, pasta, cookies, pastries, processed meats, salad dressings, ice-cream cones, cereal, soy sauce - well you get the point.

I used to wonder why people stood and read labels at the grocery store. Just buy it already was the thought that popped into my head. Well... guess what - I'm now a label reader myself. Who knew that even bacon could have hidden glutens or soup in a can or even salad dressings of all things. But it's true - we all read labels now.

Some people in our family get sicker than others if they've accidently ingested gluten. Take for instance my oldest daughter, she gets violently sick for days. My brother on the other hand doesn't really experience any symptoms so it's much harder for him to stick to a regimented diet. Me, I just really gassy, bloated and the odd time have diarrhea - kind of like a flu.

So back to the wedding, what did we serve? We managed to have an amazing stuffed chicken dinner complete with gravy and steamed veggies. The buns of course were not gluten-free but we managed to score some really great pavlova for dessert for our gluten-free members. Once the dance began we brought out a huge 32" tower of fruit, some gluten-free and regular desserts. For a really cool alternative to serving all you can drink alcohol we served all you can drink espresso's, latte's and cappuccino's.

It's not easy eating gluten-free, especially when you travel. I have to bring a suit-case full of my own food just so I can be sure I have something to eat when we get to our destination. Airports can also be tricky. But like I have told my kids who are all celiac's you can either manage your disease or let the disease manage you.

MEETING WITH THE HEALTHY LIVING MINISTER

Imagine my excitement at being invited to meet with Manitoba's Healthy Living Minister Kerri Irvin-Ross on September 2, 2008!

All along I have believed that the Personal Healthcare Journal could benefit many people. Our own family has experienced the benefits and now others are experiencing the benefits of using this simple, easy-to-use tool.

Here's a quote from an Atikokan Healthcare Team member in Atikokan, Ontario: “The possibilities for how this book can be used to help not only seniors but anyone with multiple medical needs is astounding. It is simple and easy to read with lots of space for every aspect of a patient’s health needs. What most people don’t expect when they get this book is that there is also information on how to speak with your doctor as well as information on advanced directives. I can’t tell you how important the information on advanced directives is to both patients and families. The Atikokan Family Health Team is excited about the possibilities of this book and the many uses we will have for it. We are hoping that every senior in Atikokan will have one as well as all those other people who would benefit from this book.”

Our healthcare system is changing. We need to value the work our doctors and nurses do. They are pressed from all sides: family, work, patients, other healthcare professionals and even government.

If we can help them out by staying on top of our own health, their jobs will become easier and we will all benefit.

I'll let you know how the meeting goes.

POSTER CAMPAIGN

Advertising can get expensive - so how do you get the message out that the Personal Healthcare Journal exists? A Poster Campaign.

It's beginning. Doctor's offices, hospital emergency rooms, the Wellness Centre, Great West Life in Winnipeg, message boards at Victoria Beach and in healthcare centres in Kenora.

If you or a friend would be willing to hang a poster with little tear offs that tell people where they can pick up a copy of the Personal Healthcare Journal email me at betsy@mycarenecessities.com